Profiles in Lung Cancer -- Day 15, Dr. Lucy Kalanithi

PROFILES IN LUNG CANCER – DAY 15 Lung Cancer Awareness Month 2015 Dr. Lucy Kalanithi, Lung cancer advocate and former caregiver “Lung cancer happened to Paul, but it’s something we did together.” Twitter handle:@rocketgirlmd Who are you? — I am…

Living Scan to Scan (and trying not to)

There’s another LC survivor whose catch phrase is “make the play now, cry later.” It was a lesson she learned in softball that she applied to LC. I think most of us who have been handed a diagnosis like this,…

Profiles in Lung Cancer -- Day 3: Bonnie Addario, "Lung Cancer patients are on my mind and in my heart every day"

Hi Readers! In honor of Lung Cancer Awareness Month, a group of lung cancer bloggers will be interviewing people in the lung cancer community and profiling a patient, caregiver, advocate or health care provider each day in November. I am…

Gift Ideas for Someone With Cancer

I’ve toyed with writing a blog post on the topic of gifts for a cancer patient for a long time, but haven’t because it’s a little tricky. It would be impossible to list everything I’ve received and yet, I’m terrified…

ROS1 People Unite -- Power to the Patients!

In my last blog post I mentioned how difficult I find it to live with the uncertainty, knowing that there’s no obvious post-Xalkori treatment available for me, yet. Predictably, I received several messages from others in the lung cancer community…

Update #9 -- It Never Ends

So. this is a weird place to be. I just had a PET scan and it was good. I mean, not perfect. Radiologists aren’t fond of unqualified perfect reports. They’re halfway to lawyer-ville with their CYA language. So while my…

I See You, Dad -- An Open Letter to My Dad on Father's Day

Here’s how I knew this lung cancer thing was real. I was in the hospital. I’d had my biopsy and diagnosis the day before. Upon hearing the news, my parents had flown up and had been in my room all…

On Psycho-Oncology Departments & Parachuting into Guerrilla Wars

A few months ago, when I was in the midst of a particularly difficult stretch, my oncologist referred me for a consult with the “psycho-oncology” department. When the doctor mentioned this, I was completely taken aback. “There’s such a thing…

The Lung Cancer Blame Game - How People Blame the Patients and Patients Blame Themselves

Lung cancer patients regularly bemoan the question that plagues us. The, “did you smoke?” question. There is simply no getting around it. It’s the number one thing people ask when you share your lung cancer diagnosis. (See here for more…

Gail Schlachter, My Mother-in-law, Remembered

A couple of weeks ago, my mother-in-law Gail Schlachter passed away. Our family, already burdened with my illness, has been reeling from this unexpected loss. The other day Jacob, who was particularly close with his Grandma Gail, caved under the…